The following is from https://katiecouric.com/health/remembering-my-brother-steve-who-valiantly-fought-pancreatic-cancer/?utm_source=Sailthru&utm_medium=email&utm_campaign=Weekend&utm_term=all_users
I subscribe to Katie Couric's daily "Wake Up Call" This was posted on Saturday April 24, 2021 and it was so beautiful to read.
My brother Steve passed away earlier this week after a
four-and-a-half-year battle with pancreatic cancer. These last few days
have been filled with a kind of emotional vertigo. Feelings of
heartache, loss, relief, love, kinship, loneliness, and disbelief flash
through me.
It would be easy to slide into despair — but as much as I hurt, I am
grateful. Doctors, nurses, medical staff, social workers, volunteers,
advocates, friends, family, and complete strangers locked arms with
Steve and gave us four-and-a-half years that we never expected. Every
day was hard-fought and won. Every day was precious.
I miss my brother so much already — and I will forever, but he left
me with an enduring gift: A model for how to lead a meaningful life.
In searching for a way to pay tribute to and illustrate Steve’s
bravery, grit, eloquence, and beauty, I found a shining example in a
letter he wrote about two years ago -— for his Harvard University 35th
reunion.
Each member of the class of ’84 wrote an update about their lives.
Some wrote about new jobs, new spouses, relocations, or retirements.
This is Steve’s entry…
The
last few years have re-acquainted me with the value of constructive
catastrophes. Surviving an encounter with fear, pain, disappointment or
death cultivates resilience. It also tempers ambition with the kind of
humanity from which empathy and compassion derive.
We
learn to define success more wisely, pursue it more persistently,
appreciate it more deeply, and more completely identify with others’
struggles. At our age, most of us have at least a story or two to tell
about these hard lessons -— here is mine.
You
may remember that I had a tumor removed from my spinal cord, just after
our 25th reunion. I was mostly over that by our 30th. Seeing so many
fit, vigorous classmates at that event even gave me the final push that I
needed to go from “healing” to “healed” to “healthy.”
I
made some changes. I got my good numbers up, my bad numbers down, and I
felt ready for whatever might come next. Then I found out I had
pancreatic cancer.
In
January 2017, I was diagnosed with an extremely rare form of high-grade
metastatic pancreatic cancer. Inoperable. Incurable. No standard of
care. No relative drug trials. In the immortal words of Martha and the
Vandellas, “Nowhere to run to baby, no place to hide.” According to the
medical journals, my prognosis lay somewhere between “grim” and
“dismal.”
I
am pleased to report that I have exceeded those low expectations.
Genomic razzle-dazzle, aggressive chemo, an ovarian-cancer drug and a
lot of music and laughter shrank my tumors. My doctors, nurses,
researchers, family and friends were heroic. They waged all-out war on
my behalf for seven grueling months. That bought me an improbable 15
more months with no measurable evidence of disease.
I
shared that time with my brothers, their wives, their amazing kids and
my parents. I also spent a lot of time with the family dogs -— their
uncomplicated, unconditional affection was strong medicine. I talked and
talked and talked with friends, too. They put the world on hold for me
so we could say all the things that needed saying. When I was alone, I
watched a lot of car restoration and home renovation shows on T.V. It
reassured me to see that others shared my conviction that no wreck is
completely beyond saving.
It
was a glorious reprieve. Intellectually, I knew that recurrence was
likely. I just stopped believing it. My life was so full of joy, love,
friendship, and good news
that there was no room for doubt. The magical thinking prevailed until
just about the time I started writing this. That’s when the cancer came
back.
So
my future is uncertain. Then again, whose isn’t? Some of you have
learned that much more painfully than I have. Your strength inspires my
optimism. So too, does the chorus of encouragement that surrounds me. I
am disappointed, but not discouraged. I have moments that test me but
many, many more moments that reinforce my belief in the combined power
of hope, science, a kick-ass playlist, low-carb tortillas, and kale. I
embrace the freedom to improvise that lies beyond the standard of care. I
have options. I have possibilities. I am grateful.
This
experience has taught me quite a bit about myself and the world. Most
of these revelations have been empowering. A few have been
heartbreaking. I intend to use them all to become a more compassionate,
accessable, focused and
productive person. That’s what it will take for me to do the job for
which I have been chosen -— supporting other patients, comforting their
families -— and advancing and promoting the science on which our lives
depend.
Statistics
are useful -— but sometimes they say more about yesterday than
tomorrow. Probability is not destiny. With that in mind, I plan on being
at our 35th reunion and many more thereafter.
I
look forward to celebrating the gift of time with you. If we don’t get
to reunite in person, then I will remember your virtues with respect and
affection -— and even your vices with laughter, generosity, and
forgiveness. I hope that you will do the same for me.
My brother’s own words summarize his humanity better than I ever
could. Love and be loved, care and be cared for, be brave, be positive.
Make your time worth it.
These last four-and-a-half years would never have come to pass
without the research, science, medicine, care, and love that Steve
received. The time would have never come to pass without my dear, sweet,
beautiful friend Katie -— and her counsel.
It would have never come to pass without the Pancreatic Dream Team at
Stand Up To Cancer and the brilliant medical counsel at the Jay Monahan
Center. And it would not have never come to pass without the intangible
magic of love and support -— which take all of those elements and
supercharges them. Thank you to Dr. Allyson Ocean, and each and every
person who cared for Steve — and for our family through these many
years.Steve did not “lose” his battle with cancer. Steve did not succumb to
this disease. He did not get beaten or beaten down by it. He fought, and
engaged his enemy, outsmarted and outran it — and then he simply knew
when the time was to hand the baton off. We now run with it. In his
name. In his honor. To victory. No retreat, no surrender. His legacy is
entrusted to our hands. Let’s defeat cancer in Steve’s memory and in Jay’s.